I was a nuclear power plant operator for 10 years. I have 12 years of physicals showing my heart was healthy, I was healthy, there was nothing wrong. I would run stairs all day long and I LOVED my job. I have 2 kids, now a 9 year old girl, and a 17 year old son, who is high functioning autistic. His doctors have said he will need care and guidance for the rest of his life. I have had 4 Covid shots and was sick with Covid twice. The first time being so bad all I remember is waking up to my little girl laying on the floor next to my bed with a little camp made up and her telling me she was watching me. I have the whole timeline of all of this. My vaccines included all 3 types: Pfizer, Moderna, and Jansen. My kids were vaccinated twice each with Pfizer. My daughter cause Covid once. We do not think my son ever caught it.

I’ve been fighting for my life since December of 2022. It started with a severe headache. The worst I had ever had. I ended up going to the hospital ER. My heart rate was 42 bmp. They said I had bradycardia and gave me a migraine cocktail (which did not work) and told me to see my pcp. 2 days later I see my pcp and my heart rate was down to 32 bpm and I was told I needed to go to a major hospital, the people in my town could no longer help me. From that moment on, everything went downhill. Fast. I was taken out of work by my doctor and put on short term disability. I ended up going to Missouri to stay for a couple of months because I had no one to watch my children if I was admitted to the hospital. I went to one major hospital while there. Lots of testing was done but they kept saying they didn’t know why everything was happening. I ended up coming back to Texas because my kids had school and I had to work. When I got back I was mostly in the hospital more than I was out for all of 2023. July of 2023, I was told I had myocarditis, heart failure, Labile blood pressure, tachy/bradycardia, double pneumonia, and sepsis. Once again.. no explanation. My son was diagnosed first with a gene mutation on NLRP3 gene. It was found when trying to test why he may have autism. They then tested me and my daughter. We had it too. They started us on immocompressant injections to try to help the inflammation throughout our body. 

I was eventually placed on leave to long term disability. We had no answers. I had been going through hell, including being in the hospital on cardiac ICU with a port in my neck because my blood pressure was at organ failure levels. I was passing out all the time, I couldn’t walk most of the time, couldn’t talk, couldn’t write. It was so bad. 

I applied for social security disability and it was denied, it’s in the appeal process now. I applied for government assistance and was denied. The food stamp division stated “you don’t make enough to pay all of your bills” then said “well you don’t qualify because you are $200 over our threshold limit”.

My high school friend had created a GoFundMe page for me because it was getting too hard for me to keep up with my bills. People don’t usually like GoFundMe because of the scams but I leave it up because every update is on it for people to read through. Here is the link. https://gofund.me/4b0e50bd

I’ve lost my hearing. Completely deaf on my right side with a cochlear implant. Some hearing on the left but not enough to hear without a hearing aid. My son is implanted on both sides now. My daughter wears hearing aids. All of us had to get this in 2024. I also had to undergo a massive hysterectomy. They went in thinking it was a small infection but it was everywhere. Biopsies came back with nothing. They couldn’t explain any of it. 

This genetic defect me and my children have is 1:1,000,000. I have 3 people right here in my home with it. My daughter started having the same chest pains I was having. So The kid’s rheumatologist recommended us to NIH. They turned us away. I lost it and asked my rheumatologist to give me a referral to the Mayo Clinic. I recently went. The first time I saw every department and underwent many many tests. I was getting the same thing as usual… the we don’t know but we do know you have at least these things. Then I met my cardiologist. She said she looked at everything and saw the pressure in my heart and KNEW something was wrong but didn’t know what or why! Finally someone was listening!!!! I had to go back in two weeks for more extensive heart testing. I went back. There was sooooo much testing. Testing no one else had ever done on me. They found recurrent syncope, chronic atypical chest pain with myocardial perfusion and myocardial flow, reserve, hypertension with Labile blood pressure, sinus bradycardia and tachycardia, heart failure with preserved injection fraction with exercise induced pulmonary hypertension, due to increased left sided filling pressures, and cardiomyopathy related to myocarditis. I was told my heart is too stiff to pump correctly and since I am so sensitive to heart medication’s, we are very limited on what we can use. Medication has been recommended but only half a dose and I have to wait on my cardiologist here in Texas to prescribe it. I am currently on another heart monitor to determine if a pacemaker is needed. I am also on a constantblood pressure monitor. A few days ago I woke up not being able to breathe and my chest hurting. I got so scared. I went to the emergency room and was told that once again have pneumonia. The Mayo Clinic cardiologist had told me I have 5 to 10 years to live and I will continue to get infections, including pneumonia and sepsis. My heart is not able to deliver the oxygen needed throughout my body. I was also told the myocarditis was caused by vaccines then getting Covid on top of it caused my heart failure. I’ve started monitoring my daughter‘s blood pressure and heart rate when her chest starts hurting, and she is having the exact same thing happen with her blood pressure increasing than dropping, and her pulse all over the place. I’ve asked the Mayo Clinic to see her, but they want all my test results back first. My heart will continue to harden until I need a transplant or I die. I do not think I even have five years not with the way I have deteriorated. I even vomit in my sleep now that is also documented on my GoFundMe.

People do not understand that one moment can change your entire life. I had a great career that I loved, a good life, and high hopes for my kids. It’s gotten to the point now where I have pretty much given up. The Mayo Clinic has given me some hope but there’s not a lot. So many people turn their back on me and didn’t bother to help. You don’t understand it until you’re going through it right? I need help. I need to know my children have a home to stay in if something happens to me. I owe $132,000 on my house. I owe $4000 on my vehicle. After August, I will no longer have health insuranc or life insurance. I have been having to pay out-of-pocket for it. Every month there is a bill I forgo in order to pay another bill. I am willing to help anybody I always have. I get so frustrated when I see these kind of pages for those who have committed crimes and the amounts that they are getting increase more and more yet I sit stagnant on GoFundMe with the donation here and there. What do I do for my kids? How do I protect them? If it wasn’t for my kids, I would not be fighting anymore. I fight for them. Not only so they will have me but so that they can live long healthy lives. A life not stuck in a wheelchair or in a recliner or in a bed or a hospital. I am frantically searching for answers for them. I just need help. I wish people would understand that. Please take the time to read through all the updates on my GoFundMe page. It really will help you get an understanding of the terror I have been through. Share the goFundMe. Share this fundraiser. I really am desperate. If you can donate that’s great if you can’t, that’s OK too perhaps somebody else will. Just remember every dollar is another dollar. Prayers are much appreciated. Thank you for taking the time to read. I know it was a lot, but it did not even include everything I have been through. It’s been a never-ending cycle. It’s like I’m being kicked every time I think things are looking up. I’ve lost my whole life. Help me me ensure sure my babies will be OK even if I’m not here. Perhaps that relief on my mind can also place some relief on my body. Of this I pray.